The Development
The identification of this problem was first inspired by personal experience when my little sister was treated for osteosarcoma (bone cancer) at the Children's Hospital of Los Angeles and even now that she is years into remission the lack of resources for mental health in pediatric cancer is still an area of concern. In order to get straight to the source, the main research method for Journal RX has been interviewing a variety of providers, with a focus on nurses, social workers, and psychologists. This showed that providers see the need for Journal RX and are more than willing to adopt new technology. Further interviews with patients in remission showed that this lack of attention to mental caused them to feel isolated and unheard. By involving the providers and patients from the beginning, Human-Centered Design has been a core focus while developing Journal RX.
Providers interviewed from multiple hospitals (including Children's Hospital of Los Angles, Memorial Sloan Kettering (MSK) Cancer Center, Weill Cornell, and Children's Hospital of Oakland) acknowledged the need for Journal RX and said they would be more than willing to adopt it into their practice.
After progressing through multiple rounds of elimination in the Cornell Tech Startup program, I built a team of health tech students, a data scientist, and three programmers who helped with some of the prototypes shown above.
The next steps for Journal RX include looking for a clinical research partner in this work, reaching out to psychologists, MDs, and other mental health workers who are interested in the Journal RX mission and/or a cancer foundation, creating a focus group of former patients now in remission to prove efficacy before then applying for funding and/or partnering with a hospital to support app development.
Additional Notes
Having seen how much a cancer diagnosis impacts a family, Journal RX will be implemented through hospitals (and eventually through insurance) so that the financial responsibility is never put on the family.
While the original plan was to test these prototypes with the adolescent and young adult program at Memorial Sloan Kettering Cancer Center (as they had offered) it was then discovered an IRB (Institute Review Board) would be required to ethically obtain any data from a hospital which takes months/years to obtain.